Registry Expansion (Registry Expansion)
Registry Expansion (Registry Expansion)
Summary
An ED visit registry with automated transmission from the electronic health record data for pediatric patients at participating sites. The Registry currently contains data from all ED visits from nine sites with data spanning calendar years 2012 through 2020. Each site transmits data to the DCC monthly. Comprehensive data quality assurance rules have been automated to assess data quality and validation of the transmitted data. The Registry is about to undergo an upgrade to the data collection system and is currently onboarding three new sites. The Registry has data on over 4.4 M visits and 1.6 M unique patients. Data are also used for health services research, comparative effectiveness research, hypothesis generation and grant planning for the network. The Registry is utilized in four other funded PECARN grants.
Key Publications
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AuthorsHoffmann JA, Carter CP, Olsen CS, Chaudhari PP, Chaudhary S, Duffy S et al.JournalPediatrics (2023)PMID
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AuthorsChaiyachati BH, Wood JN, Carter C, Lindberg DM, Chun TH, Cook LJ et al.JournalPediatrics (2022)PMID
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AuthorsGoyal MK, Johnson TJ, Chamberlain JM, Casper TC, Simmons T, Alessandrini EA et al.JournalPediatrics (2017)PMID
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AuthorsJohnson MD, Zorc JJ, Nelson DS, Casper TC, Cook LJ, Finkelstein Y et al.JournalThe Journal of pediatrics (2020)PMID
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AuthorsAronson PL, Mahajan P, Nielsen B, Olsen CS, Meeks HD, Grundmeier RW et al.JournalPediatrics (2025)PMID
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AuthorsAlpern ER, Ramgopal S, Olsen CS, Simon NE, Chamberlain JM, Alessandrini E et al.JournalJAMA network open (2026)PMID
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AuthorsAronson PL, Mahajan P, Nielsen B, Olsen CS, Meeks HD, Grundmeier RW et al.JournalThe Journal of pediatrics (2026)PMID
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AuthorsGrundmeier RW, Masino AJ, Casper TC, Dean JM, Bell J, Enriquez R et al.JournalApplied clinical informatics (2016)PMID
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AuthorsJohnson TJ, Goyal MK, Lorch SA, Chamberlain JM, Bajaj L, Alessandrini EA et al.JournalPediatric emergency care (2022)PMID
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